Yesterday our goal was to make it out of the house to take me grocery shopping. I managed to get dressed, so off we went! But when we got there, all the mobile scooters were either taken, or charging and not available for use yet. So mum came up with the idea that she would push me in my shiny red wheelchair, while my niece Nikki would push the shopping cart alongside us. And together we roamed around for about an hour, collecting my shopping list. We actually had fun doing this, which was amazing. We made it a family affair, and it was just.. nice.
When we originally left, I didn’t think I was going to make it. My heart symptoms are worse and thus I couldn’t breathe well without said pressure in my chest, and.. it wasn’t looking good for me staying upright. =\ But THEN I found half of a Lortab in my purse! And so I took it, and was able to “go shopping.” (Granted I’ve been on Vicodin for four days now because of that persisting severe headache, but yesterday it was mostly gone.) I’m sure I’ve mentioned before, but hydrocodone has this additional effect of giving me more energy and better cognitive ability. I’m always amazed at how much half a pill can work at improving my overall level of sickness, and I’m not sure what it was doing in my purse, but I was so glad it was there! It took about half an hour to work, and then I was able to sit up, and breathe, and think, and.. function. Incredible. I stayed in the car while Mum went into the other places for me–post office, pharmacy, discount store–and by the time we arrived at the grocery store, I was ready. (This effect that hydrocodone has on me is what makes me eager to try Low Dose Naltrexone, which also binds to the opioid receptors.)
Truth be told it would have been smarter yesterday to not override my body’s signals, and go back home, because now I have to pay the consequences, but… It’s not my fault that everything I do comes with payback. I don’t have the option of pushing myself 99% of the time, unless it’s due to medicinal intervention like hydrocodone or caffeine. And everytime I use one of those, I have to pay extra for it. But really, sometimes you just have to pay the consequences, lest I’d never get to do anything. I’d never shop or get to the doctor or be able to take a bath… That’s just how it is. I consider myself lucky that I am able to recover from it, instead of being at a level where every trip out of the house would incapacitate me for the next few months. And honestly, if I didn’t have my medicine (olive leaf extract, ubiquinol, l-carnitine), I know I’d be at that level. A couple of months without the OLE, and a week off of the co q-10/ubiquinol, taught me exactly how much I depend on them…
So after the trip, on the way back home, something odd happened, that hasn’t happened in about two years. My temperature dropped to 97.8°F; I was freezing. My temperature goes up and down between high-98 and low-99′s, but it hardly ever drops into the 97′s in the middle of the day. About six hours later, it went back up to 98.6°F, and then half an hour after that, down to a normal 98.2°F… This morning I woke up at 7am, took my temperature, and it was 97.1°F. I took it again when I woke up at 1pm, and it was a normal 98.6°F, where it’s been most of the day with mild (normal!) fluctuations. The last time this happened was also after a shopping incident, so I can only assume this occured because of the forced exertion (or rather, me overiding whatever level of sickness I was at before taking the hydrocodone).
Also for the record I am now on my 12.5mg dose of Zoloft to control the OCD and PMDD. This was started on the 1st.
I think I got a migraine last night, but because of my other headache, I didn’t notice that’s what it was until much later. But I had such typical migraine symptoms! Right-sided pain and facial numbness… I don’t know how I didn’t realize what was going on! (Ironically, last time I was in Walmart I got a migraine, too. And the time before that, as well. And every time I go in there my nose starts to run, no matter what season it is. I wonder if that’s significant? I hope I’m not developing some sensitivity to the place. But anyway…) Not paying attention and thinking it was just my other severe headache (which is still trying to go away completely), I took pain meds for that… But of course it was a migraine so they weren’t very effective! They helped me cope, but did nothing to actually alleviate it. When I woke up “this morning” I finally realized where I’d gone wrong, and lucky for me I was able to take migraine meds and they still worked to get rid of it. In the past I’ve had terrible luck with stopping migraines after they’ve begun, so this really was quick lucky!
Ah, and that’s enough typing for me today. I need to be preparing for whatever sort of crash I may get after yesterday.
♥ a rainbow at night