Almost finished with bartonella treatment!!

I used to post much more often than this, I know, but… Things are somewhat monotonous! I don’t have to constantly be on top of symptoms every five to seven days to post updates as regularly. Or at least I don’t think I do… Last month, around the 5th, and then the 10th, I had the same symptoms as this month, around the 5th, and then the 10th… I’m not sure what that’s about.

The past few weeks I’ve still been antsy over my random symptoms. Flu-like, fever (99.5 on the 6th–probable Lyme?), severe headaches, neckaches, dizziness, legs going very weak/requiring wheelchair, POTS, poor mental state. All very possible Lyme symptoms! But this is my last chance to make sure there’s no reliable pattern before we stop the bartonella treatment. These are possibly my last few days on Rifampin, after being on it a year! I also don’t think I’d be able to tolerate a maintenance dose of my Bactrim (i.e., two single-strength tablets per day) plus the Minocycline and Tindamax I think he’s switching me to this week… But! I am comforted by the fact that Minocycline has bacteriostatic action against bartonella (and mycoplasma), so even if there are some remnants, they won’t be able to replicate! :)

At any rate, Lyme is being.. interesting. I have not have a headache for about a week! Which is very ironic, because they’d otherwise become daily events! (Also ironic is I didn’t have a headache the last time I posted!) I just don’t get the bartonella-related headache anymore, the ones that hurt in the front of your head like a sinus headache might. I have about half of the symptoms I had at this time last month. The inflammation is way down so I haven’t needed any ibuprofen. Severe fatigue for several days, weak legs, numbness in my legs, episodes of arthritis, an internal tremor all day yesterday… What has surprised me with its reoccurence is the sensation of a bruise on the back of my left ankle, just like last month! It’s not an actual bruise, I don’t think, because it just spontaneously happened while I was lying down, and then I was limping the rest of the night. It makes no sense, but it’s obviously something Lyme related. It’s like achilles tendonitis that only lasts one night, haha.

I don’t have the results of my thyroid ultrasound yet but the technician said I only had like three little cysts??? That’s very good!

I leave you with a quote from Ralph Marston. :)

“Frustration comes from focusing on what you cannot control.
Achievement, on the other hand, comes from focusing on all the useful and valuable things you can do.

Resentment comes from seeing yourself as a victim.
Effectiveness comes from stepping up and taking responsibility.

If you constantly complain that life is unfair, you’ll blind yourself to the best opportunities.
Yet by simply accepting that what’s done is done, you’ll find a way to make the most of it.

Don’t waste your time arguing and fighting with life.
Instead, invest your time and resources in inspiring and encouraging the best in yourself and in those around you.

There is good, positive, fulfilling value to be lived every day, in any situation.
Choose to be the person who shines a light on that potential value and who brings that value fully to life.

Let go of the frustration, resentment and despair by letting the positive possibilities fill your awareness.
Embrace and enjoy the immense power that comes from taking full, unconditional responsibility for all you are and all you experience.”

a rainbow at night

2 responses to “Almost finished with bartonella treatment!!

  1. Dear Rainbow,

    Please get well soon, but remember that the Bartonella can be harder to cure than the Lyme. Bartonella antibiotics will also work for Lyme, but not the other way around. Nine months on three of the oral drugs, similar to yours, in 2009, did not work to clear my Bartonella. Now I am at five months of IV antibiotics and oral ones, for the Bartonella, and am still sick. Please be sure that you do not have the Bartonella relapsing as it so often does, so far twice for me.

    • I agree that it’s hard to treat and notorious for relapse. It also comes back twice as bad if it does relapse. I’ve had to switch antibiotics.. twice?.. so far, the first due to severe herxing via Doxy, then again because the Zithro stopped working (as that antibiotic is wont to do). Supposedly you treat until your symptoms stop, then treat for two more additional months just to be sure, because of that tendency to relapse. I’ve been treating it steadily for one year, now. :) And after this I’m going on Minocycline which still treats it so I hope even there are a few survivors, that will work. Of course there are over two dozen different strains and misuse of antibiotics which lead to resistance, so no two people treating will be alike.

      It’s pretty much impossible to predict what will happen in the future, but as of right now, I’m ready to declare a (very weary but hopeful) victory. I’ll make another post soon. :)

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