Response to Article: Very few M.E. sufferers recover

By: Dr John H Greensmith, ME Free For All.org

“The reason I am absolutely certain that Yvette Cooper’s Consultant cannot reliably say that 90% of people with Myalgic Encephalomyelitis make a full recovery is that no one in the world knows how many people have M.E. The shocking reality is that there has never been an agreed figure for M.E. sufferers. It follows, therefore, that no one could say how any percentage fares at all. This doesn’t seem to stop people from doing so.”

Well I wouldn’t agree completely with that. It’s a general consensus in the M.E. world that about 25% are severely affected, while the category referred to as “most” actually teeter in and out of various categories.

Any estimates of the hybrid ‘Chronic Fatigue Syndrome/Myalgic Encephalomyelitis’ (CFS/ME), which is a fudged collective diagnostic term for several conditions with chronic fatigue (which M.E. sufferers do not routinely have), [and excludes] cardinal symptoms which M.E sufferers do have, makes matters worse… Experimental research samples, from which conclusions are [extended] to M.E. sufferers, may not have contained [even] a single person with this dreadfully debilitating neurological condition, which is being denied its own identity. Yet this is how too many doctors and researchers, who ought to know better from school level statistics, persist in proceeding.”

“It is not always certain that people said to have had M.E. did actually have it but, for example, may have had a particularly severe infection of Epstein-Barr Virus (Glandular Fever), which can take 2-3 years to get over. Yvette Cooper may have been among these.”

It’s nice finding doctors that still fight for this distinction, thus understand why today’s research is so construed. By the way, this was in response to Yvette Cooper’s statement in this article.

“It wasn’t a consideration. I was off work for a year with it, then worked part-time for another two years so it did take a long time to recover. But my consultant did say that over 90% [of ME patients] made a full recovery, and it never came back. It’s one of those things you hope people suffering from it now will realise.

. . .

a rainbow at night

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One thought on “Response to Article: Very few M.E. sufferers recover

  1. “Yet this is how too many doctors and researchers, who ought to know better from school level statistics, persist in proceeding.”

    :[

    I’m so sad that they’ve messed it all up by squishing things together, completely screwing statistics and making it just impossible to know anything. <3 That's REALLY hard when you want to have some idea of how it will go. *hugs all over you*

    Like

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