Just a Treatment Update

I’ve been feeling mostly “okay” recently, in that I can now function throughout the day. In fact I was even wondering whether it’d be time to increase my antibiotics… And then this week happened.

This week has been exhausting. My menstrual cycle found its way back to me on the 11th, so. The weakness has been terrible, I’ve been half-asleep most of the time, and my air hunger has returned (in that I constantly need to yawn). My appetite is also quite poor.

Yesterday was really bad. The night of the 13th I got a severe headache (Lortab needed) and then the following day (yesterday/14th) I woke up angry at the world and came very close to needing oxygen again… I mean, no doubt I should have used it, but it was just so depressing to think of needing it after a month and a half of NOT needing it! I pulled through, obviously, but could have come out of it a bit quicker had I just grabbed the O2. Sigh. Oh well. That’s my stubborness, and as of last night I was feeling much better.

Bartonella flares appear to be happening as follows:
~ April 3rd
~ April 8th (bad day)
~ April 14th (bad day)

Last night I drunk an Ensure… I wasn’t thinking and had the entire drink. So what happened that night here happened again. Trouble breathing, numb tongue and throat, limbs tingling, numbness in right arm. It was even more startling when I wanted to inhale but my body wasn’t doing it…! But I knew the dysautonomia was causing it, so I didn’t spaz. I’ve been drinking two bottles of Ensure a day, in 4-ounce doses to not overload my digestive system, which I should have done last night, but forgot. :\

So I think I should still be on this small doses. The herxing just hasn’t been as bad, which is good, but.. as long as I’m still herxing a little, right? I still flail and have bursts of strange thoughts after the Rifampin. And after the Zithro, my gosh…! I am so dizzy. In fact I need to mention that I’ve been dizzy for the past three weeks. I may even need to be keeping track of it, more. It gets so bad sometimes my eyes cross and I can’t focus.

In general, I am in and out of the wheelchair. I can usually walk to get something, but cannot stand in one place, even for a few seconds. In the evenings and night, I am always better, but this is nothing new. Waiting for my appetite to return… STILL NO CARDIAC SYMPTOMS!!! This is so significant and amazing! :D And my eyes have stopped twitching… :)

a rainbow at night

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