A Monumental Moment in My Treatment!

Well, the beginning-of-the-month flare might be vanishing, but perhaps it’s not completely gone yet.

For the past two day (prior to today), I was having that left-sided “fire foot” sensation. I imagine people with peripheral neuropathy will know what I’m talking about. It’s as if you’ve momentarily stuck your foot into a fire, hence, “fire foot.” It usually occurs during my Lyme flares, but I’ve heard a lot about it concerning bartonella, which has an affinity for the feet, so I’m not positive. Also, my brain fog for the past.. I’ll say four days (again, prior to today) has been ridiculous. I’m usually ten times better cognitively, while on my olive leaf extract, but not even that has been able to save me from whatever’s been happening. The main event of today has been more peripheral neuropathy, but of my left arm and hand, to where the skin feels raw; even the sensation of water was painful. So highly uncomfortable, but I’d like to think it’s happening because the bugs are being killed there. And that’s about all. Some “leftovers,” if you will, but this is still a great step up. I can’t wait to see what doesn’t happen by June! :)

Neuro status: I’m still seeing things, but not as much. My face still tries to slant to the left every now and then. I’m still struggling with dystonia and parkinsonism, but it’s no where near as severe as it’s been in the past. I now only have an action-oriented tremor instead of a constant tremor. I’m still having autonomic neuropathy with my vagus nerve, but it’s so much improved I only notice during a larger-than-normal meal.

So, on Tuesday we went to Walmart. It took everything I had to get out of the house. My supplements, Ubiquinol, a good prayer, some meditation, and Vicodin. (I can’t have caffeine, if you’ll remember.) But I did it! Then Yesterday I “payed for” it with a crash. Then today, after a whole bunch of rest (and ubiquinol) to help the crash, I was mostly recovered! (I cannot, cannot, cannot stress enough the value of Ubiquinol or Co Q-10 during this. I just can’t. If you’re reading this blog and you have M.E., or even if you have Lyme, you need to be on this supplement. It is worth every dear penny.) So today, being recovered, we had a few more places to tackle. Post office. Dog medicine. Dog food. I got out at two of the places, with just my cane!!!

It’s the first time I’ve been in a store (or any building) without my wheelchair, since last year.

I’m slowly but surely accomplishing my little to-do list! This morning I even brushed my teeth and washed my face, while standing up! *waits for the resounding gasps*

Oh, treatment is working.

a rainbow at night

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2 thoughts on “A Monumental Moment in My Treatment!

  1. Hey! I’m *so* happy to hear about how the treatment is working, and you were out without a wheelchair. That’s awesome. T___T I was so worried about you when you were in the hospital and it’s GREAT to know that you’re doing even a little better.

    I feel you with the neuropathy. :( Sorry it’s so bad lately–the bugs are dying and they’re pissed off! Soon they won’t be able to do anything though, cause, well, they are dying. *cheers* @_@

    Also, I need to try these supplements. :[ I still feel terrible haha! Also, phone died and cannot be found. ._. When alive I will look for it! <3

    Like

    1. I’m sorry I never replied to this! I did read it, but never got back. I’m ecstatic that treatment is working, too! And it’s definitely nice to be out of the wheelchair. I know there was a very scary time when I wasn’t sure if I’d even have that option.

      It’s annoying, isn’t it? But I can deal with it, if it means they’re dying!

      Ahhh yes, I’d highly recommend ubiquinol, or even just regular co q-10!

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