After almost seven years with this infection, I think the bartonella may be gone for good.
If you recall from this previous post, I talked about how my health was either about to nosedive, or finally overthrow this infection thanks to the millions of antibodies I now get infused into my body every four weeks (certainly many of which are bartonella antibodies, since this bacteria is so common)… Guess which one happened?
Since April, I’ve been having none–none–of those symptoms I talked about eight months ago.
My favourite part of this–aside from the “won’t have bartonella as a possible cause of death” thing, of course–is that I finally have my personality back, without a lapse every five or six days. I am emotionally stable! I also think that toxoplasmosis may have been playing a far greater role than my doctors originally thought, because my level of extraversion is also completely gone and I am now a solid INFJ instead of the ambivert I’d been for most of my life… But that’s a topic for another day.
As I said the first time the bartonella was painstakingly beaten into remission, it’s been known to relapse, sometimes even up to 15 years later. But for right now? It’s over.
It’s over it’s over it’s ok.
And now, to elaborate on all the things that my miracle IVIG has done and is doing:
- Eradicated all strains of bartonella
- Finished off lingering rickestsia, ehrlichia, and toxoplasma infections
- Fighting Lyme disease bacteria and mycoplasma pneumoniae;
- the two are clinically indistinguishable and I’ve tested positive for both, so who knows!
- Since April, my pain levels are no longer steadily worsening;
- seemingly the result of removing bartonella?
- I can now reply to e-mails, comments, and other messages once or twice a week instead of a few times per year.
- I CAN READ BOOKS AGAIN!
- Ever since the M.E. came out of remission in 2007, I’ve only been able to read books for maybe a combined 2 weeks per year. I did have some better periods while on antibiotics for Lyme & Company, but since stopping treatment three years ago I’ve had to rely on audiobooks, only. People with M.E. have eye tracking problems, and I guess some of that must be infection and/or immune mediated, for antibiotics to have helped at all, and for IVIG to have helped so dramatically. Subsequently, my ability to read shorter things has also magnificently improved, but. Books!!!
- I CAN EAT RAW VEGETABLES AGAIN, as well as a much wider variety of cooked vegetables, too!
- This is something I haven’t been able to do in at least seven years because I just couldn’t digest them. In fact,
- ALL symptoms of autonomic neuropathy have either improved or stopped worsening, including:
- peripheral neuropathy
- trouble swallowing
- heat/cold intolerance and dysregulation
- gastroparesis and other digestive problems
- blood pressure dysregulation
- heart rhythm abnormalities
- and urinary problems (i.e. difficulty sensing bladder fullness, inabilty to empty bladder, inability to start urination and/or completely empty bladder)
- I no longer have regular symptom patterns of Lyme (and/or Mycoplasma).
- I no longer need nasal sprays to prevent sinus infections, except during the week before infusions.
- I no longer need topical medications for skin infections, except during the week before infusions.
- I’m no longer visiting the emergency room for uncontrollable dehydration every two months.
- This is partially due to the extra saline I get after infusions, but the lessened infection load is also a huge factor. Even if I’ll always have difficulty staying hydrated because of the M.E., at least now I can keep myself out of hospitals!
- I’m able to stay upright for long periods of time without autonomic mayhem,
- Sit up using my own muscles for longer periods of time without needing to lean on something, and
- Be out of bed wayyyy more than my previous 1 or 2 hours.
I am no longer progressively getting worse.
So there you have it. Immunoglobulin replacement therapy has been life saving in every sense, to my actual physical survival, and my quality of life, especially.
I know I got this at just the right time. It’s pretty obvious to me how bad things were about to get. But I’ve spent the past three years coping with that, so there’s NO need to reiterate at this time. I got the absolute most out of what that experience had to offer, and I know I will get the most out of whatever is to come.
Because now things are different. I am definitely out of the relapse.
What amazes me.. well, not necessarily the most, but amazes me regardless, is that I reached the point where I didn’t have to spend my every waking moment afraid of making the wrong choice. I learned to truly trust my intuition, even when it seemed to be going against everything that actually made sense. Yes there were worries, yes there were concerns, but after they’d moved me towards action and I acknowledged them as valid, I let them be. I didn’t try to stop my fear from existing, I just.. witnessed it, without taking it too seriously, without trying to “figure it all out” before I decided I could relax. And everything still worked out, and worked out more perfectly than I could ever describe. Imagine that. This has been my way of life for many years, and this quote sums it up perfectly:
“Ask your higher wisdom if it is not true that without worry
you would have arrived exactly where you are now, and more pleasantly.
Worry and fear are not tickets on the express train.
They are extra baggage.
You were going that way anyway.” (source)
This present stage is so exciting. Every part of our body (well, almost) is constantly regenerating, and soon, my body will be made of so much more adequate material than it has ever had before, thanks to all the changes I’ve been able to incur.
The end point, here? Follow your intuition. It doesn’t exist to necessarily keep your body from dying, but it’ll make sure you learn all your bullet-points–and probably enjoy the ride–while you’re still here.
♥ a rainbow at night