About the author

Hi, I’m Kit, and I tend to fit into these boxes:

Optimistic realist. Artist. Unitarian Universalist Buddhist. Writer. LGBTQ+.

I live with an acquired, incurable, viral-induced neurological disease called myalgic encephalomyelitis, that profoundly affects all muscles in my body. Four years after its onset I contracted Lyme disease, then several even worse infections, including bartonella. After years of treatment failure and relapse, each one more severe than the last, I made the painstaking choice in 2013 to forego any additional treatment for these infections in favor of living my life while I was still here to do it. The following year I began non-invasive intravenous immunoglobulin replacement therapy (IVIG) in hopes of at least slowing things down, and it not only worked, but it has now been three years without any known recurrence of bartonella.

However, because of my pre-existing primary immunodeficiency disease and extremely delayed diagnosis, I had already developed late stage neuroborreliosis, or Lyme disease that has spread to the brain and spinal cord. At this stage, there is no known cure, and the focus becomes keeping the bacterial load low enough to prevent further damage and/or lessen the frequency of relapses. Due to my continued inability to tolerate the necessary antibiotics, it was confirmed earlier this year to have progressed to multiple sclerosis.

This site started as my health diary to track symptoms, progression, and progress during the years of grueling treatments to save my life. Gradually it changed into my place to talk about all things related to chronic illness and disability, including my path to wholeness, particularly through the lens of Buddhism, mindfulness, and acceptance.

Thank you for reading, and please feel free to write, comment, or just browse at your leisure. (:

last updated May 2017

Relevant links:

a rainbow at night on:

Note: The “arainbowatnight” on Tumblr and Instagram is not me.


6 thoughts on “About the author

  1. I am desperate to help my husband who is exhibiting symptoms of Occipital Neuralgia. It’s s onset has been about a week. Over the counter pain meds are of no help. He has recently had an infusion of Rituximab for a cancer associated retinopathy. FDA figures show 0.1% people will experience ON from Rituximab. The pain is relentless. He says an 11 or 12. I am scared for him.


    1. Hi Janet, I am so sorry to hear of your Loved one’s suffering. A level “11 or 12” sounds incompatible with consciousness, and may not be ON at all. I recommend you treat this as a medical emergency and take him to the ER immediately. If it IS occipital neuralgia they will probably send him for a temporary nerve block, if it continues to prove unresponsive to medication, but best to go the ER, first.

      Best wishes, Kit


  2. After reading several of your entries I too, note that ibuprofen decreases many of my autoimmune symptoms including brain fog, vagus nerve dysfunction and ensuing palpitations and of course joint pain. Consuming no gluten and dairy helps my tinnitus and migraine and no onions, garlic or pulses stops digestive discomfort. I hope you find relief on the road to being cured and continue shining with your optimistic light and warm heart. X


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